Journal of Pediatric Gastroenterology and Nutrition
Cure8 research brief
Why This Matters
Disability and functional limitations (school, sports, travel, diet) are common early after pediatric IBD diagnosis and can persist for some children even after clinical remission. Recognizing and measuring disability matters because it affects quality of life and may guide supportive care and rehabilitation.
Who Should Pay Attention
Parents and caregivers of children with IBD; pediatric gastroenterologists and multidisciplinary pediatric IBD teams; researchers developing pediatric IBD outcome measures.
Study Snapshot
Story typeResearch paper
Evidence typeResearch paper
Source depthJournal abstract
What To Know
This paper reports a systematic review of disability in pediatric inflammatory bowel disease (PIBD) plus results from a single-center inception cohort. The authors found few pediatric studies and no PIBD-specific disability instrument; most prior work used a generic tool (Functional Disability Inventory).
In the cohort of 80 children, 38% had any disability at 4 months after diagnosis and 10% had moderate–severe disability; rates fell by 12 months. Domains most affected included dietary restrictions, sports participation, travel, and school functioning. Disability was more common at 4 months in children with active versus inactive disease.
The study highlights that functional limitations occur commonly early after diagnosis and can persist even when clinical remission is achieved. The authors conclude there is a need for standardized, pediatric-specific disability assessment tools in PIBD.
Keep In Mind
Abstract-level summary from a Journal of Pediatric Gastroenterology and Nutrition article combining a systematic review and a single-center inception cohort. Findings are based on extracted abstract and cohort of 80 children; full-text review may provide additional detail.
Source Details
Review the original publication for the complete reporting, methods, and context.
Research paper
Evidence type derived from source or registry metadata.
PublicationJournal of Pediatric Gastroenterology and Nutrition
PublisherWiley
AuthorsReut Rappaport, Ouriel Hannaux, Gili Focht +11 more
Study typeJournal Article
Indexed viaCrossref
Source typeResearch paper
PublishedSep 22, 2026, 12:00 AM
Content availableJournal abstract
This Cure8 brief is based on source text from the linked article. Cure8 is informational only and is not a substitute for professional medical advice, diagnosis, or treatment.
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