Cure8 news brief
This highlights a local family’s experience with pediatric Crohn’s disease, showing how community support and Foundation programs can help patients and caregivers connect, fundraise, and access resources.
It also mentions common diagnostic steps and that many people with IBD may need long-term medication and specialist care.
Parents and caregivers of children with Crohn’s disease or IBD, pediatric patients and families, local IBD community members, and clinicians involved in pediatric IBD care.
A Lexington family — including 9-year-old Soleil, diagnosed with Crohn’s disease — was named the Crohn’s & Colitis Foundation’s 2025 New England Take Steps Honored Family for advocacy and fundraising.
The article describes Soleil’s symptoms (loss of appetite, weight loss, fever), diagnostic workup at Boston Children’s Hospital (including colonoscopy and endoscopy), treatment with infusion therapies starting fall 2022, and the family’s fundraising and community engagement through the Foundation’s Take Steps walk.
The piece is a human-interest profile focused on advocacy, family experience, and the Foundation’s local programs rather than new scientific findings or clinical guidance. It quotes Foundation staff about research investment and the community benefits of Take Steps events.
This is a local human-interest article about advocacy and fundraising rather than a clinical study. It references standard testing (endoscopy/colonoscopy) and infusion treatments but does not provide clinical details, trial data, or treatment recommendations. For medical decisions, consult a clinician.
The Foundation’s research funding figures are reported by the article and reflect the organization’s stated investments.
Review the original publication for the complete reporting, methods, and context.
This Cure8 brief is based on source text from the linked article. Cure8 is informational only and is not a substitute for professional medical advice, diagnosis, or treatment.
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