Cure8 research brief
People with IBD often face mental-health challenges, stigma and unpredictability of symptoms. Adapting an established CBT-based digital programme with direct input from patients and clinicians can make the content more relevant and acceptable for people living with IBD.
adult-patients, clinicians, researchers, patient-advocates
A CBT-based digital programme called COMPASS was adapted specifically for people with inflammatory bowel disease (COMPASS-IBD) using patient and public involvement (PPI) and input from healthcare professionals.
The adaptation used an iterative four-stage process (workshop, one-to-one calls, clinic observations, and review) to identify IBD-specific challenges and make recommended changes.
The team identified themes such as the invisible and unpredictable nature of IBD, symptom burden, stigma and isolation; these informed IBD-specific patient stories and content refinements. Of 64 recommendations made during adaptation, 56 were implemented.
The paper documents that embedding lived experience throughout adaptation improved acceptability and contextual relevance of the intervention and may support future implementation and engagement. This brief is grounded in the article abstract provided by the source.
Structured content depth is abstract: this classification and note are based on the article abstract provided by Europe PMC. The paper describes the adaptation process and PPI involvement; it does not report outcome data on effectiveness within the abstract.
Review the original publication for the complete reporting, methods, and context.
Funding disclosed by the source: Crohn's and Colitis UK - P2021/1
This Cure8 brief is based on source text from the linked article. Cure8 is informational only and is not a substitute for professional medical advice, diagnosis, or treatment.
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