Cure8 research brief
Emerging adults with IBD face distinct challenges managing care. The study shows people diagnosed as children may know about their disease but still need help with practical self-management tasks — a gap that can affect independence and successful transition to adult care.
Emerging adults with IBD, parents and caregivers supporting transition, pediatric and adult IBD clinicians, and transition-program planners.
A cross-sectional survey of 178 emerging adults (122 pediatric-diagnosed, 56 adult-diagnosed) found similar IBD knowledge, medication adherence, and satisfaction with the care team between groups.
However, those diagnosed in childhood were less likely to independently perform specific self-management tasks: scheduling visits, contacting the care team, calling in refills, and preparing questions for providers.
How this could help you The findings suggest targeted education and supports (skills training, transition programs, or practical coaching) may benefit emerging adults diagnosed in childhood to close gaps in everyday healthcare autonomy.
Cross-sectional design assesses associations at one timepoint and cannot prove cause. The sample is from a single study location and grouped by age at diagnosis; results reflect self-reported behaviors. Structured content depth: abstract — this brief is grounded in the article abstract provided and does not represent a full review of the complete paper.
Review the original publication for the complete reporting, methods, and context.
This Cure8 brief is based on source text from the linked article. Cure8 is informational only and is not a substitute for professional medical advice, diagnosis, or treatment.
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