Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition
Cure8 research brief
Why This Matters
Patients with short bowel syndrome and their caregivers can face heavy, multidimensional burdens including dependence on parenteral nutrition/IV hydration, frequent symptoms like fatigue, increased healthcare use, and significant caregiving stress. Recognizing these impacts can inform care planning and support needs.
Who Should Pay Attention
Patients with short bowel syndrome, caregivers of people with SBS, gastroenterologists and clinicians who manage parenteral nutrition, and health services researchers.
Study Snapshot
Story typeResearch paper
Evidence typeResearch paper
Source depthJournal abstract
What To Know
This paper reports results from the Landmark Survey, a cross-sectional patient- and caregiver-reported study of adults with short bowel syndrome (SBS) who are dependent on parenteral support.
The abstract summarizes burdens including high rates of comorbid Crohn’s disease, frequent fatigue and other disabling symptoms, substantial emergency visits and hospitalizations, heavy reliance on total parenteral nutrition and IV hydration, and marked impacts on work, daily activities, and caregivers’ stress and employment.
The study surveyed 91 patients and 66 caregivers across the US and Europe and focused on health-related quality of life, healthcare use, employment effects, and caregiver burden. The authors conclude SBS imposes a multidimensional burden and highlight the need for therapies that reduce complications from parenteral support and improve quality of life.
The brief is based on the article abstract provided on PubMed (structured content depth: abstract). It does not include additional data or full-text results beyond that abstract.
Keep In Mind
Findings come from a cross-sectional survey (Landmark Survey) summarized in the PubMed abstract; the abstract-level summary limits detail on methods and full results. The study highlights burden rather than testing a treatment.
Source Details
Review the original publication for the complete reporting, methods, and context.
Research paper
Evidence type derived from source or registry metadata.
PublicationNutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition
AuthorsJenny E Harrison, Syed-Mohammed Jafri, Roopa Vemulapalli +9 more
InstitutionGirls With Guts, Philadelphia, Pennsylvania, USA.
Study typeJournal article
Indexed viaPubMed
Source typeResearch paper
PublishedAug 10, 2026, 12:00 AM
Content availableJournal abstract
This Cure8 brief is based on source text from the linked article. Cure8 is informational only and is not a substitute for professional medical advice, diagnosis, or treatment.
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