PubMed Central
Cure8 research brief
Primary Ciliary Dyskinesia: A Suggested Pathway to Transition From Pediatric to Adult Care
Procedures and surgery
Patient Education
Why This Matters
People with PCD often move from pediatric to adult care during late adolescence, and without structured transition programs they can drop out of care. Using an established transition framework could help maintain continuity and engagement in adult care.
Who Should Pay Attention
Pediatric and adult clinicians, care coordinators, adolescents/young adults with PCD, and parents/caregivers.
Study Snapshot
Story typeClinical Reference
Evidence typeResearch paper
Source depthMetadata only
What To Know
The paper highlights that PCD is a rare genetic disorder causing impaired mucociliary clearance and chronic respiratory problems; adult patients outnumber pediatric patients and many adult PCD centers are collaborating with pediatric centers and seeking accreditation.
The authors recommend using the Six Core Elements (a recognized transition framework) to structure programs, and they discuss barriers unique to PCD compared with diseases that already have established transition guidelines (for example, CF and IBD).
The article appears to be a practice-oriented review and pathway proposal published in a pediatric pulmonology journal; it summarizes existing transition frameworks and suggests how they can be adapted for PCD rather than reporting new trial data.
Keep In Mind
This article is a pathway/proposal published in Pediatr Pulmonol summarizing existing frameworks (Six Core Elements) and program experiences; it is not a formal guideline or clinical trial report.
Source Details
Review the original publication for the complete reporting, methods, and context.
Research paper
Evidence type derived from source or registry metadata.
PublicationPubMed Central
JournalPediatr Pulmonol
AuthorsCastro, Abel De, Collins, Melanie Sue, Jain, Raksha +3 more
Indexed viaPubMed Central
Source typeResearch repository record
PublishedAug 13, 2026, 12:00 AM
Content availableMetadata only
This Cure8 brief is based on source text from the linked article. Cure8 is informational only and is not a substitute for professional medical advice, diagnosis, or treatment.
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